NORD Launches Tool to Help Patients with Rare Diseases Navigate Insurance

The National Organization for Rare Disorders (NORD) has introduced NORD Claim Your Care, a digital tool aimed at assisting individuals with rare diseases in navigating health insurance in the U.S. The platform offers comprehensive resources to help these patients understand health insurance, select appropriate coverage, and appeal any insurance denials. NORD aims to empower patients and their families by providing education on health insurance basics and decision-making processes regarding coverage options.

NORD Claim Your Care is designed to increase health literacy and provide tools that will streamline the insurance navigation process for patients with rare conditions. It includes a health coverage toolkit that contains guides on various health insurance aspects, such as coverage benefits, costs, and types of medical insurance available. By centralizing information from NORD's 360 member organizations, the initiative seeks to alleviate the challenges that individuals with rare diseases face regarding their healthcare and insurance.

The tool is also a response to the overwhelming nature of health insurance navigation, particularly for those with complex health needs. The program highlights the importance of informed choices in health coverage as they significantly affect both health outcomes and financial stability. NORD’s strategic partnerships with pharmaceutical companies are noted as vital support for this educational initiative, which aims to ensure that patients feel supported in making essential health-related decisions.